NIH Neurological Institute
P.O. Box 5801
Bethesda, MD 20824
(301) 496-5751
(800) 352-9424

The National Institute of Neurological Disorders and Stroke, a component of the National Institutes of Health, is the leading Federal supporter of research on disorders of the brain and nervous system. The Institute also sponsors an active public information program with staff who can answer questions about diagnosis and research related to Huntington's disease.

Private voluntary organizations that provide the public with information on treatment, diagnosis, and services include the following:

Huntington's Disease Society of America (HDSA)
140 West 22nd Street, 6th Floor
New York, NY 10011-2420
(212) 242-1968
(800) 345-HDSA (345-4372)

The HDSA supports research, assists and educates families, trains professionals about Huntington's disease, and monitors testing guidelines. The Society publishes brochures, pamphlets, a newsletter, reprints, and listings of testing centers. It also sponsors conferences, training programs, and nationwide chapters and support groups.

Hereditary Disease Foundation
1427 Seventh Street, Suite 2
Santa Monica, CA 90401
(310) 458-4183

This foundation promotes research on genetic disorders and sponsors workshops and fellowship programs. The group provides additional support to the two brain banks noted above.

National Institute of Neurological Disorders and Stroke
National Institutes of Health
Bethesda, MD 20892