Young Adults Can Tell It Like It WAS!

Many of you have been previously contacted regarding the HD Family Study to learn about how family members manage health concerns when a person has HD. We are very grateful for your assistance. You may recall that this study includes not only the wellbeing of adults in the families, but also the teens. We know that teens can have many questions and concerns about managing the challenges of HD as they grow up. We are writing to you because we need to hear from young adults, such as yourself, about how you felt as a teenager. This information will be very important in helping us devise ways to support teens in HD families who try not only to keep up with being a student and teenager, but also with being in an HD family.

I am asking adults, between the ages of 19-30 to volunteer to complete the survey about their teen age years living in a family where a person had HD. The survey asks you to provide information about you and the person with HD, to indicate health concerns you had about the person with HD, to indicate personal health concerns you had about yourself, and to indicate what strategies you used to manage these concerns. It may take between 30-60 minutes to complete the survey.

You can receive further information, or receive the survey, by contacting Dr. Joan Laing at The University of Iowa. When you return the survey, you will receive either a $25.00 iTunes gift certificate or a $25.00 Radio Shack gift certificate as a token of our appreciation.

Some of the questions ask about your emotions when you were a teen. If you find these questions to be distressing, you can contact Dr. Williams to be referred to a specialist. You will not benefit personally from completing the surveys. However, we believe that teens in HD families may benefit in the future from what we learn as a result of this study.

If you would like to receive a survey, please contact Dr. Joan Laing at 319-353-5414, joan-laing@uiowa.edu; or by returning the response form.

Thank you for considering participating in this opportunity to help teens as well as people who have HD.

Source: The University of Iowa

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