by Jan Finney Jones, HDSA/LA, Updated 28-Mar-2001

Alice (not Nancy) Wexler was trying to come to the ARR...... but she can't..... She is helping by drafting Surveys for us (met with her last week). I think that Nancy is in Venezuela now, on her annual trip there. The HDF, besides a donation of $300, also gave us enough copies of Mapping Fate to give one to each attendee......

We have room for more attendees...... 25 so far, confirmed..... inquiries from more... including 3 possibles just day before yesterday.....

HD 2001: A Spaced-Out Odyssey

April 27, 28, 29, 2001
Bass Lake, CA


Carrie Statkus, at risk and originator of idea for At Riskers' Retreat.

Jan Jones, making it happen.

Calling all young adults who are At Risk for Huntington’s Disease!

A weekend retreat will be held just for you, designed by you and your At Risker peers, to address your unique concerns.

Make your reservation NOW if you are even considering attending, as space is very limited.

The Retreat is for young adults, ages 18 to 40 or so, non-symptomatic, tested or untested or chosen not to test. Each At Risker may bring one adult Significant Other (friend or spouse), if desired.

We will discuss topics like:


Program

Activities will begin on Friday afternoon. We encourage everyone to take Friday off work or school, so that you can be at the Retreat to participate beginning at 2:00 p.m. (Better yet, why not arrive on Thursday?)

Saturday will be a full day of panel presentations, discussion groups, and an evening of entertainment with music and DJ. Lisa and her sister will be here.

Sunday will include some inspiration to carry us through life…. Although Sunday’s program will end at noon, there will be recreational activities in the afternoon, including hiking with Jerry Lampson, webguy of The HD Lighthouse.
 

Professionals include:

Ed Garza, MFT Intern Orange Caregiver Resource Center Andrea Zanko, MS Genetics Counselor, UCSF

 
Michelle Fox, MS, CGC, Genetics Counselor, UCLA


Teresa Tempkin
, RNC, MSN, ANP, Nurse Practitioner, UC Davis

John M. Ringman MD,
Director, Neurology Clinics, UCI

 Additional information will be available soon

Sponsors include:

Greater Los Angeles Chapter of HDSA
San Diego Chapter of HDSA
Northern California Chapter of HDSA
Caregiver Resource Centers
The Hereditary Disease Foundation
Amarin Corporation
 
Scholarships are available through HDSA/LA,  for those in the Greater Los Angeles Chapter area. e-mail HDnewsLA@aol.com
 
To make donations specifically for this event, make checks payable to HDSA/LA, mark "For At Riskers’ Retreat", and mail to
HDSA/LA, 9903 Santa Monica Blvd., Suite 106, Beverly Hills, CA 90212.
HDSA is a 501(c)(3) corporation, and donations are
tax-deductible to the full extent of the law.

The Pines Resort

Located on Bass Lake, just 14 miles from Yosemite National Park, The Pines Resort and Conference Center offers many amenities, like 3 restaurants, sporting activities, The Pines Market, and spa services. Visit http://www.basslake.com

A special room rate has been negotiated for this Retreat, including days before or after the Retreat. A two-story chalet, with room for up to six people, full kitchen, living room with sofa bed, cable TV, patio with BBQ, downstairs bedroom (king, queen, or 2 queen beds) and bath, usually about $219, is only $119 a night (plus tax).

Room reservations should be made now directly with The Pines Resort, at 1-800-350-7463. Mention you are booking for the At Riskers’ Retreat. Room space is limited, so make a reservation NOW.

Please make your own arrangements to share a room with others. If you cannot do so, or want to car-pool, then e-mail HDnewsLA@aol.com . No promises, but we will try to help. Dress is very casual: blue jeans, t-shirts, sweats, jogging shoes, etc. Don’t forget a warm jacket, boots, hat, gloves, umbrella, sunscreen, swimsuit, toiletries, flashlight, and snacks.

Your Input

Tell us about yourself. What would you like at this retreat? Any questions?
Name:
E-mail address for contact:


Registration

The registration fee is $50.00. This fee includes some meals on Saturday.
Note: You must make your own room reservations! See above.


Make your reservation NOW as space is very very limited. If you have questions, e-mail HDnewsLA@aol.com, or phone your CRC leader.

To display just this form for printing click here. Complete this form and mail with a check ($50.00 per person) made payable to "HDSA/LA", to: At Riskers’ Retreat, c/o Jan Finney Jones, 17821 E. 17th St., Ste 270, Tustin, CA 92780.

Print names___________________________________________________________

Print
Address______________________________________________________________

_____________________________________________________________________


Phone___________________________ E-mail_______________________________

No. of people _________      		Check enclosed for $________________

OK to put your name and information in a list for attendees?
YES _______     	NO _______