New to the Huntington's Disease Lighthouse?
 Welcome to the HDlighthouse!
 Getting started.
 
Home \ Treatment & Care \ Care \ Managing HD \ Updates
Zero Suicide Campain

HD Lighthouse Contributing Editor's Comment: Researchers now know that a direct effect of an expanded Interesting Transcript 15 (the HD gene) is the down regulation of BDNF (ref). Lower brain levels of BDNF are associated with depression (ref). Exercise and diet may be the most effective way to restore BDNF (ref).

It is better to light a candle than to cry our against the darkness. I hope that everyone that reads the Huntington's Disease Lighthouse will join Phil as a proactive HD advocate. Help get the word out on all the exciting new things that are known about HD. Help with Phil's Zero Suicides Campaign. Add your point of light.

-- Jerry Lampson
Posted to the HDL: 05 May 2002


We can unit to raise awareness of depression while eliminating suicide
Together we can make a difference by lowering this unacceptable loss of precious lives!

Zero Suicide Campaign

Phil Hardt

In the heat of our newly advocacy roles I almost forgot to send you my latest “campaign” handout that I rolled out last week in Michigan: HD-Affected Depression.

Since the appalling suicide rate for those with HD is greater than 7-8 times the national average, and since HDSA sees no need to approach a big manufacturer of anti-depressants to get them to underwrite a National program to raise awareness of depression’s double whammy in HD, and since I brought it up in my reform speech last July, I felt obligated to begin a grassroots campaign to eliminate the suicides we are compelled to still live with because of untreated/unacknowledged HD-Affected Depression.

Last year alone, our support group in Tucson, AZ experienced 2 HD-affected suicides. Our current national suicide rate is appalling and I hope by posting this information and by encouraging others to make, distribute and discuss this handout at their support groups and AGMs, we can unit to raise awareness of depression while eliminating suicide.

I started distributing this handout and talking about what it contains last weekend while speaking at the Michigan Chapter Annual General meeting. I encourage everyone who can to do the same.

When making a tri-fold handout I copy page 2 onto the back of page 1. Page 3, the reference sheet is separate. Page 4 can be blown up to poster size (costs about $4 at Kinko’s for a 2’ x 3’ black and white poster) and placed up to get everyone’s attention at your next meeting. The handouts should be placed close by! Thank you for helping me with this very important Zero Suicides Campaign! -- Phil

Suicide Prevention Brochure (pdf)

# # #

Source: HDlighthouse.org

print this
printer friendly
version

 

Read the HDAC/HDLighthouse Forum. Post your comments
   
Related Topics
 
Exercise, a heart and brain friendly diet, and spiritual/emotional well being have all been shown to slow the delay of the progression of HD.
 
 
Recent Updates
12 Feb 2008
FDA Notifies Public of Adverse Reactions Linked to Botox Use
The FDA has information for your doctor about botox.
 
19 May 2007
Quality of life: patients and partners
Researchers confirmed the obvious - that a caregiver's perception of progression is different than that of the HD patient.
 
18 May 2006
A Review of the Treatment Options for HD Symptoms
Full text of a review of medications for HD symptoms is provided by permission.
 
18 May 2006
A Review of the Treatment Options for HD Symptoms
Full text of a review of medications for HD symptoms is provided by permission.
 
25 Jul 2004
Review of Medications for HD symptoms
While we are all grateful for the research into potential treatments for Huntington’s Disease, in the meantime research into treatments of the symptoms has lagged behind. This is why it’s so importan
 
25 Jul 2004
Review of Medications for HD symptoms
While we are all grateful for the research into potential treatments for Huntington’s Disease, in the meantime research into treatments of the symptoms has lagged behind. This is why it’s so importan
 

All Updates for Managing HD
Disclaimer & Privacy Policy | Welcome | Site Feedback Marsha@HDLighthouse.org